Publications and Presentations

This list identifies the publications and presentations made by our faculty in recent years. In most cases, access to the publication and information about the presentation is provided. 

Click on any year below to view the list for that specific year:

Publications                     
2016  2017  2018  2019 2020   

Presentations   
2016  2017  2018  2019 2020



Publications

2021

  • Heitman L, Litewka S. Responsible Conduct of Research.  In: Itlis A and Mackay D, eds. Oxford Handbook on Research Integrity, Oxford: OUP, Forthcoming 2021. 

2020

  • Litewka SG, Heitman E. Latin American healthcare systems in times of pandemic. Developing World Bioethics. 2020 Apr 20; Accepted. Authorized Manuscript. DOI: 10.1111/dewb.12262
  • Walsh CG, Chaudhry B, Dua P, Goodman KW, Kaplan B, Kavuluru R, Solomonides A, Subbian V. Stigma, biomarkers, and algorithmic bias: recommendations for precisions behavioral health with artificial intelligence. JAMIA Open. 2020 Jan 22; DOI: 10.1093/jamiaopen/ooz054
  • Rubinstein PF, Middleton B, Goodman KW, Lehmann CU. Commercial Interests in Continuing Medical Education. Academic Medicine. February 11, 2020 - Volume Publish Ahead of Print - Issue - 2020 Feb; DOI: 10.1097/ACM.0000000000003190 

2019

  • Kareff SA, McNulty M, Goodman KW, Agarwal G. Introducing first-year dual-degree medicine and public health students to ethics and professionalism. Journal of Hospital Ethics. 2019;6(2):95-100.
  • Brosco JP. Identifying the right outcomes to measure for children with medical complexity. Developmental Medicine & Child Neurology. 2019 Sep;61(9):1000. DOI: 10.1111/dmcn.14146.    
  • Lloyd-Puryear M, Brower A, Berry SA, Brosco JP, Bowdish B, Watson MS. Foundation of the Newborn Screening Translational Research Network and its tools for research. Genetics in Medicine. 2019 Jun;21(6):1271-9. DOI: 10.1038/s41436-018-0334-8.  
  • Goldenberg AJ, Lloyd-Puryear M, Brosco JP, Therrell B, Bush L, Berry S, et al. Including ELSI research questions in newborn screening pilot studies. Genetics in Medicine. 2019 Mar;21(3):525-33.DOI: 10.1038/s41436-018-0101-x.  
  • Champney T. A Bioethos for Bodies: Respecting a Priceless Resource. Anatomical Sciences Education. 2019;12(4):432-434.DOI: 10.1002/ase.1855 
  • Champney T, Hildebrandt S, Gareth Jones D, Winkelmann A. BODIES R US: Ethical Views on the Commercialization of the Dead in Medical Education and Research. Anatomical Sciences Education. 2019 May;12(3):317-25. DOI: 10.1002/ase.1809
  • França K, Litewka S. Controversies in off‐label prescriptions in dermatology: the perspective of the patient, the physician, and the pharmaceutical companies. International Journal of Dermatology. 2019 Jul;58(7):788-94. DOI: 10.1111/ijd.14222
  • Gressick K, Gelpi A, Chanroo T. Zika and abortion in Brazilian newspapers: how a new outbreak revived an old debate on reproductive rights. Sexual and Reproductive Health Matters. 2019 May 31;27(2):20-3. DOI: 10.1080/26410397.2019.1586818
  • Hlaing WM, Saddemi JL, Goodman KW. Expanding ethics curriculum resources: American College of Epidemiology's syllabus collection project. Annals of Epidemiology. 2019 Oct;38:1-3. DOI: 10.1016/j.annepidem.2019.08.009 
  • Harle CA, Golembiewski EH, Rahmanian KP, Brumback B, Krieger JL, Goodman KW, Mainous AG, Moseley RE. Does an interactive trust-enhanced electronic consent improve patient experiences when asked to share their health records for research? A randomized trial. Journal of the American Medical Informatics Association. 2019 Jul 1;26(7):620-9. DOI: 10.1093/jamia/ocz015
  • Holt GE, Goodman KW, Olvey SE, Kett D. Nonstandard do-not-resuscitate orders. Current Opinion in Anaesthesiology. 2019 Apr;32(2):179-83. DOI: 10.1097/ACO.0000000000000690 
  • Lehmann CU, Petersen C, Bhatia H, Berner ES, Goodman KW. Advance directives and code status information exchange: a consensus proposal for a minimum set of attributes. Cambridge Quarterly of Healthcare Ethics. 2019;28(1):178-185. DOI: 10.1017/S096318011800052X 
  • Miklin DJ, Vangara SS, Delamater AM, Goodman KW. Understanding of and Barriers to Electronic Health Record Patient Portal Access in a Culturally Diverse Pediatric Population. JMIR Medical Informatics. 2019 Apr 26;7(2):e11570. DOI: 10.2196/11570  
  • Zandi D, Reis A, Vayena E, Goodman K. New ethical challenges of digital technologies, machine learning and artificial intelligence in public health: a call for papers. Bulletin of the World Health Organization. 2019 Jan 1;97(1):2. DOI: 10.2471/BLT.18.227686 
  • Litewka S. "Research Tourism” in the Caribbean. Caribbean Network of Research Ethics Commitees (CANREC) Bulletin. 2019, Vol 1 No 1; pp.9-10. Available from: https://www.researchgate.net/publication/337740189_Caribbean_Network_of_Research_Ethics_Committees_CANREC_Bulletin
  • Vizcarrondo FE. Medical Futility in Pediatric Care. The National Catholic Bioethics Quarterly. 2019;19(1):105-20. DOI: 10.5840/ncbq20191919
  • França KP, Kumar A, Castillo D, Jafferany M, Hyczy da Cista Neto M, Damevksa K, Wollina U, Lottie T. Trichotillomania (hair pulling disorder): Clinical characteristics, psychosocial aspects, treatment approaches, and ethical considerations. Dermatologic Therapy. 2019 Jul;32(4):e12622. DOI: 10.1111/dth.12622 

2018

  • Brosco JP. Whose Odyssey Is It? Family-Centered Care in the Genomic Era. Hastings Center Report. 2018; 48:S20-S22. DOI: 10.1002/hast.879.
  • Brosco JP, Pulgaron E, Vanderbilt DL, Macias M, Mathew MS, Blum NJ. The interprofessional/family-centered-care observation rubric (i-for): results of a multicenter study of a new measure of educational outcomes. Maternal and Child Health Journal. 2018;22(10):1384-1392. DOI: 10.1007/s10995-018-2591-1
  • Wo SR, Largent EA, Brosco J, Rosenberg AR, Goodman KW, Lantos JD. Should foreigners get costly lifesaving treatments in the United States? Pediatrics. 2018 Nov;142(5):e20180175. DOI: 10.1542/peds.2018-0175.  
  • Goodman KW, Birnbach DJ. Ethics and plastic surgery practice. In: Cohen M, Thaller S, eds., The Unfavorable Result in Plastic Surgery: Avoidance and Management, 4th ed., New York: Thieme, 2018, pp. 25-30.
  • Holt GE, Kett D, Goodman KW. More on an Unconscious Patient with a DNR Tattoo. New England Journal of Medicine. 2018;378:875-877. DOI: 10.1056/NEJMc1800052 (correspondence).
  • Malin B, Goodman K. Between Access and Privacy: Challenges in Sharing Health Data. Yearbook of Medical Informatics. 2018 Aug;27(01):055-9. DOI: 10.1055/s-0038-1641216  
  • Kaye J,  Terry SF, Juengst E, Coy S, Harris J, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R,  Kato K, Rial-Sebbag E, Marshall P, Koenig B,Cambon-Thomsen A. Including all voices in international data-sharing governance. Human Genomics. 2018;12(13):1-6. DOI: 10.1186/s40246-018-0143-9.
  • Isasi R, Mastronardi C, Golder M, Allan D, Walker M, Halpenny M, Yang L, Elmoazzen H, Chargé S. Assessing Opportunities and Challenges for Establishing a National Program to Distribute Cord Blood for Research.Transfusion. 2018;58(7):1726-1731. DOI: 10.1111/trf.14602
  • Moreno JD, Litewka SG. Sonic attacks: How a medical mystery can sow distrust in foreign governments. The Conversation [Internet]. 2018;06 27; Available from https://theconversation.com/sonic-attacks-how-a-medical-mystery-can-sow-distrust-in-foreign-governments-98417.
  • Bell J, Bordag, N, Borry P, Bovenberg J, Dagher G, Grewal J, and Hoppe N, Isasi, R, Kaye J, Knoppers B, Kwisda K, Morrison M, Néron A,  Nys H, Oberauner-Wappis L, Rial‐Sebbag, E, Sandor J, Shabani M, Tournay V, Varju M, Zatloukal K, Governing Stem Cells: Regenerative Medicine in Europe - The Vision and Recommendations From the EUCelLEX Project (December 21, 2018). Governing Stem Cells: Regenerative Medicine in Europe,The Vision and Recommendations From the EUCelLEX Project, Edited by Emmanuelle Rial-Sebbag (EUCelLEX Consortium), December 2018. Available at https://ssrn.com/abstract=3347724

2017

  • Brosco JP, Feudtner C. Shared decision making for children with Trisomy 13 and 18. JAMA Pediatrics. 2017;171(4):324-325. DOI: 10.1001/jamapediatrics.2016.4943
  • Champney TH. Authorship guidelines for anatomical studies. Clinical Anatomy. 2017 May;30(4):429. DOI: 10.1002/ca.22838
  • Champney TH. The lack of memorial services in for-profit and non-profit willed body companies in the United States. In: Štrkalj G, Pather N, eds., Commemorations and Memorials: Exploring the Human Face of Anatomy [Internet]. Singapore: World Scientific Publishing, 2017, pp.: 41-48. DOI: 10.1142/9789813143159_0004               
  • Kahn PA, Champney TH, Hildebrandt S. The incompatibility of the use of unclaimed bodies with ethical anatomical education in the United States. American Association of Anatomists. 2017 Mar;10(2):200-1. DOI: 10.1002/ase.1672 (Correspondence)          
  • França K, Lotti T. The history of medicine. Wiener Medizinische Wochenschrift. 2017 Oct;167(S1):1. DOI: 10.1007/s10354-017-0596-9
  • Goodman KW. Health information technology as a universal donor to bioethics education. Cambridge Quarterly of Healthcare Ethics. 2017;26(2):342-347. DOI: 10.1017/S0963180116000943.
  • Holt GE, Sarmento B, Kett D, Goodman KW. An unconscious patient with a DNR tattoo. New England Journal of Medicine. 2017;377(22):2192-2193. DOI: 10.1056/NEJMc1713344 (Correspondence)
  • Salerno J, Knoppers BM, Lee LM, Hlaing WM, Goodman KW. Ethics, big data and computing in epidemiology and public health. Annals of Epidemiology. 2017;27:297-301. DOI: 10.1016/j.annepidem.2017.05.002
  • Tenenbaum JD, Goodman KW. Beyond the Genetic Information Nondiscrimination Act: ethical and economic implications of the exclusion of disability, long-term care and life insurance. Personalized Medicine. 2017;14(2):153-157. DOI: 10.2217/pme-2016-0078.
  • Kareff S, Goodman KW. Ethics in MD/MPH curricula: A case study describing unique considerations for dual-degree students. MedEdPublish. 2017; 6(2): 2. DOI: 10.15694/mep.2017.000064.
  • Knoppers BM, Isasi R, Caulfield T, Kleiderman E, Bedford P, Illes J, Ogbogu U, Ravitsky V, Rudnick M. Human gene editing: revisiting Canadian policy. npj Regenerative Medicine. 2017, 2:3;1-2. DOI: 10.1038/s41536-017-0007-2.
  • Isasi R. Bioethics: Justice in genomics. Nature. 2017; Nov;551(7680):296-7. DOI: 10.1038/551296a
  • Knoppers BM, Leader A, Hume S, Shoubridge EA, Isasi R, Noohi F, et al. Mitochondrial Replacement Therapy: The Road to the Clinic in Canada. Journal of Obstetrics and Gynaecology Canada. 2017 Oct;39(10):916-8. PMID: 28733061. DOI: 10.1016/j.jogc.2017.05.007
  • Deakin ND, Cronin T, Trafford P, Olvey S, Roberts I, Mellor A, Hutchinson PJ. Concussion in motor sport: A medical literature review and engineering perspective. Journal of Concussion. 2017; 1: January 1, 2017, DOI: 10.1177/2059700217733916
  • Diekema DS, Leuthner SR, Vizcarrondo FE, eds.  Bioethics Resident Curriculum: Case-Based Teaching Guides. Elk Grove Village, IL: American Academy of Pediatrics, 2017. Available at https://www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Section-on-Bioethics/Pages/Bioethics-Case-Based-Teaching-Guides-for-Resident-Training.aspx.
  • Ormond KE, Mortlock D (Co-Chairs), Scholes DT, Bombard Y, Brody LC, Faucett WA, Garrison NA, Hercher L, Isasi R, Middleton A, Musunuru K, Shriner D, Virani A, Young CE. Human Germline Genome Editing. The American Journal of Human Genetics. 2017 Aug;101(2):167-76.DOI: 10.1016/j.ajhg.2017.06.012.  
  • Kim J-H, Kurtz A, Yuan B-Z, Lomax G, Loring J, Crook J, Ju J-H, Clarke L, Inamdar MS, Pera M, Firpo M, Sheldon M, Rahman N, O'Shea O, Pranke P, Zhou Q, Isasi R, Rungsiwiwut R, Kawamata S, Oh S, Ludwig T, Masui T, Novak T, Takahashi T, Fujibuchi W. “Report of the International Stem Cell Banking Initiative workshop activity: current hurdles and progress in seedstock banking of human pluripotent stem cells”. Stem Cells Translational Medicine. 2017 Nov;6(11):1956-1962. DOI: 10.1002/sctm.17-0144
  • Illes J, Sipp J, Kleiderman E, Benjaminy S, Isasi R, Lomax G., Master Z, McCormick J, Ogbogu U, Ravitsky V, Robillard J, Rossi F, Wilson B, Zarzeczny A. “A Blueprint for the Next Generation of ELSI Research, Training, and Outreach in Regenerative Medicine”. NPJ Regenerative Medicine. 2017 July 5;2:21. DOI: 10.1038/s41536-017-0026-z.
  • Isasi R. Human Genome Editing: Reflections on Policy Convergence and Global Governance. Genomeditierung – Ethische, rechtliche und kommunikations – wissenschaftliche Aspekte im Bereich der molekularen Medizin un Nutzplanzenzüchtung. Zeitschrift für Medizin-Ethik-Recht – ZfMER (Editor) 1(Jg.8) (2017). DOI: 10.5771/9783845291901-287.
  • Knoppers BM, Isasi R, Caulfield T, Kleiderman E, Bedford P, Illes J, et al. Human gene editing: revisiting Canadian policy. NPJ Regenerative Medicine. 23 (2017). PMID: 29302340 DOI: 10.1038/s41536-017-0007-2  

2016

  • Brosco JP. Child Rights and Clinical Bioethics: Historical Reflections on Modern Medicine and Ethics. Perspectives in Biology and Medicine. 2016;58(3):356-64. DOI: 10.1353/pbm.2016.0003. 
  • Champney TH. The business of bodies: Ethical perspectives on for‐profit body donation companies. Clinical Anatomy. 2016 Jan 1;29(1):25-9. DOI: 10.1002/ca.22643
  • Fiore RN. Bioethics: Environmental, Encyclopedia of Global Bioethics. Springer International Publishing. 2016 1-12 DOI: 10.1007/978-3-319-05544-2_466-1
  • Fiore RN, Goodman KW. Precision medicine ethics: selected issues and developments in next generation sequencing, clinical oncology and ethics. Current Opinion in Oncology. 2016;28(1):83-7. DOI: 10.1097/CCO.0000000000000247
  • Goodman KW. Ethics, Medicine, and Information Technology: Intelligent Machines and the Transformation of Health Care. Cambridge: Cambridge University Press, 2016.
  • Goodman KW. Ethical and legal issues in decision support. In: Berner ES, ed., Clinical Decision Support Systems: Theory and Practice, Third Edition. New York: Springer, 2016, pp.: 131-146.
  • Cañete R, Brito K, Guilhem D, Goodman KW. Perception and Satisfaction with Received Information Regarding Treatment for Intestinal Parasitic Infection in Cuban Patients. West Indian Medical Journal. 2016;65(3):519. DOI: 10.7727/wimj.2014.307 
  • Isasi R, Kleiderman E, Knoppers BM. Editing policy to fit the genome? Science. 2016;351(6271):337-9. DOI: 10.1126/science.aad6778
  • Isasi R, Rahimzadeh V, Charlebois K. Uncertainty and innovation: Understanding the role of cell-based manufacturing facilities in shaping regulatory and commercialization environments. Applied Translational Genomics. 2016;11:27–39. DOI: 10.1016/j.atg.2016.11.001
  • Isasi R, Zuchner SL, Cañete R.  Genetics boosts US–Cuban links. Nature. 2016;539:357 (Correspondence). DOI: 10.1038/539357d
  • Litewka S. Mala Conducta Científica: Un fenómeno global y atemporal. In: Ruiz de Chávez, MH., ed.,  Temas Selectos de Conbioética. Mexico, DF: Comisión Nacional de Bioética/Secretaría de Salud, 2016, pp.: 176-183.
  • Isasi R. “Regulating Human Genetics Research in Latin America: A race to the top or a race together?” Revista Iberoamericana de Bioética. 2016;1:1-10. DOI: 10.14422/rib.i01.y2016.006. 
  • Brosco JP,  Bona A. Changes in academic demands and attention-deficit/hyperactivity disorder in young children. JAMA Pediatrics. 2016;170(4):396-397. DOI: 10.1001/jamapediatrics.2015.4132.

2015

  • Brosco JP. Conflicts in family-centered pediatric care for patients with autism. AMA Journal of Ethics. 2015;17(4):299-304. DOI: 10.1001/journalofethics.2015.17.4.ecas1-1504.
  • Litewka S, Goodman KW., Pediatric research in Latin America: Focus on governance and populations. Asian Bioethics Review. 2015;7(2):179-187. DOI: 10.1353/asb.2015.0014.
  • Miklin DJ, Fiore RN. fMRI Imaging and decision making in vegetative patients: Ethics, technology, and welfare. American Journal of Bioethics Neuroscience. 2015;3;6(2):49-51. DOI: 10.1080/21507740.2015.1026001.

Presentations

2020

2019

2018

2017

2016