Information Technology and Ethics

From decision support and Big Data to privacy and interoperability, University of Miami Institute for Bioethics and Health Policy faculty have been studying the intersection of information technology and ethics for more than two decades.

Areas of Research

  • Health Information Technology
  • Big Data
  • Artificial Intelligence
  • Electronic Health Records
  • Public Health Informatics
  • Privacy & Data Protection

Collaborations

World Health Organization
A WHO Collaborating Centre in Ethics and Global Health Policy, UM's Institute for Bioethics hosted a special international consultation on "Big Data and Artificial Intelligence for Achieving Universal Health Coverage." Meeting Report  |  Meeting agenda and presentations

North American Center for the Study of Ethics and Health Information Technology
A nonpartisan academic and professional collaboration between the University of Miami Miller School of Medicine Institute for Bioethics and Health Policy and the Indiana University School of Medicine Center for Bioethics. Learn more.

European Centre for the Study of Ethics, Law and Governance in Health Information Technology
A partner to the North American Center for the Study of Ethics and Health Information Technology, ECELGHIT sponsors biennial workshops and supports other projects. Learn more.

ALERT Research Group
A collaboration with Middlesex University in London, which focuses on theoretical and applied research into the mutual effects of law and ethics on technology. Learn more.

Faculty Publications

Books

Ethics, Medicine, and Information Technology: Intelligent Machines and the Transformation of Health Care
Written by Prof. Kenneth W. Goodman, Director of the University of Miami Miller School of Medicine’s Institute for Bioethics and Health Policy, the book is an overview of issues in ethics and health information technology. It is written for clinicians, researchers and students who work in health information technology and ethics professionals who realize the important and scope of such technology. Link to publisher’s website.

Selected Recent Papers

Malin B, Goodman KW. Between access and privacy: Challenges in sharing health data. International Medical Informatics Association, IMIA Yearbook of Medical Informatics 2018;27:55-59. doi: dx.doi.org/10.1055/s-0038-1641216

Goodman KW. Health information technology as a universal donor to bioethics education. Cambridge Quarterly of Healthcare Ethics 2017;26(2):342-347. doi: 10.1017/S0963180116000943

Goodman KW. Ethical and legal issues in decision support. In Berner ES, ed., Clinical Decision Support Systems: Theory and Practice, Third Edition. Switzerland: Springer International, 2016, pp.: 131-146.

See More Publications

Cambridge Quarterly of Healthcare Ethics

CALL FOR SUBMISSIONS:
A leading international bioethics journal has introduced a new section on ethics and health information technology. The section will feature original work on ethical, legal, policy and social aspects of the use of computing and information technology in health, biomedical research and the health professions. Learn More

Related Links

Archives

Project HealthDesign
Project HealthDesign was a research-and-development initiative to explore aspects of personal health records. It was the first project in health information technology to include an ethics component at the outset. Sponsored by the Robert Wood Johnson Foundation, the program featured multidisciplinary grantee teams from across the United States. The Institute for Bioethics received RWJ support to oversee Ethical, Legal and Social Issues (ELSI) analysis for the project. Learn More

Markle Foundation
UM faculty contributed to the Markle Connecting for Health Policy Subcommittee and the Personal Health Technology Council, which led to the Markle Connecting for Health Common Framework for Private and Secure Health Information Exchange, published in 2006.

Privacy / Data Protection Project
The Privacy / Data Protection Project, which ended in 2005, was a public education effort focusing on information protections in the health sector, particularly the HIPAA Privacy Rule and Security Rule. The Project’s HIPAA courses have been adapted and now are available as part of the CITI Program IPS series.