Information Technology and Ethics

From decision support and Big Data to privacy and interoperability, University of Miami Institute for Bioethics and Health Policy faculty have been studying the intersection of information technology and ethics for more than two decades.

Areas of Research

  • Health Information Technology
  • Personal Health Records
  • Public Health Informatics
  • Privacy & Data Protection
  • Related Projects

North American Center for the Study of Ethics and Health Information Technology
A nonpartisan academic and professional collaboration between the University of Miami Miller School of Medicine Institute for Bioethics and Health Policy and the Indiana University School of Medicine Center for Bioethics. Learn More

Project HealthDesign
Project HealthDesign was a research-and-development initiative to explore aspects of personal health records. It was the first project in health information technology to include an ethics component at the outset. Sponsored by the Robert Wood Johnson Foundation, the program featured multidisciplinary grantee teams from across the United States. The Institute for Bioethics received RWJ support to oversee Ethical, Legal and Social Issues (ELSI) analysis for the project. Learn More

Privacy / Data Protection Project
The Privacy / Data Protection Project, which ended in 2005, was a public education effort focusing on information protections in the health sector, particularly the HIPAA Privacy Rule and Security Rule. The Project’s HIPAA courses have been adapted and now are available as part of the CITI Program IPS series.

Collaborations

ALERT Research Group
A collaboration with Middlesex University in London, which focuses on theoretical and applied research into the mutual effects of law and ethics on technology. Learn More

Markle Foundation
UM faculty contributed to the Markle Connecting for Health Policy Subcommittee and the Personal Health Technology Council, which led to the Markle Connecting for Health Common Framework for Private and Secure Health Information Exchange, published in 2006.

Faculty Publications

Books

Ethics, Medicine, and Information Technology: Intelligent Machines and the Transformation of Health Care
Written by Prof. Kenneth W. Goodman, Director of the University of Miami Miller School of Medicine’s Institute for Bioethics and Health Policy, the book is an overview of issues in ethics and health information technology. It is written for clinicians, researchers and students who work in health information technology and ethics professionals who realize the important and scope of such technology. Link to publisher’s website.

Papers

Goodman KW. Ethical and legal issues in decision support. In Berner ES, ed., Clinical Decision Support Systems: Theory and Practice, Third Edition. Switzerland: Springer International, 2016, pp.: 131-146.

See More Publications

Cambridge Quarterly of Healthcare Ethics

CALL FOR SUBMISSIONS:
A leading international bioethics journal has introduced a new section on ethics and health information technology. The section will feature original work on ethical, legal, policy and social aspects of the use of computing and information technology in health, biomedical research and the health professions. Learn More

Lectures and Events

Lectures

The following are lectures hosted by the University of Miami Miller School of Medicine Institute for Bioethics and Health Policy in the areas of Information Technology, Informatics, Data and Ethics.

September 30, 2016
Balancing Health and Privacy in “Intelligent Environments”
Carlisle George, LL.M, PhD
Middlesex University

September 19, 2014
Ethics, Biomedical Informatics and Translational Science
Click here for streaming video (Silverlight)
Peter J. Embi, MD, MS, FACP, FACMI
The Ohio State University

October 14, 2005
Electronic Patient Records: Sources of Data and Targets of Research
Melissa Goldstein, J.D., The Markle Foundation, Washington, D.C.

December 8, 2000 
Information Shortfall: Clinical Trials, Computers and the Need to Know 
Charles Jaffe, M.D., Ph.D., AstraZeneca Pharmaceuticals

February 22, 2002
Privacy, Data Protection and the Law 
Anita Cava, J.D., Reid Cushman, Ph.D., Mike Novo, J.D., University of Miami Department of Business Law, Ethics Programs, and Office of the General Counsel

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