The Institute for Bioethics and Health Policy has established relationships and undertaken projects and initiatives with a variety of organizations. This page provides an archive of some of the main projects with links to materials.
Robert Wood Johnson Foundation-Project HealthDesign: Rethinking the Power and Potential of Personal Health Records
Project HealthDesign was a research-and-development initiative to explore aspects of personal health records. It was the first project in health information technology to include an ethics component at the outset. Sponsored by the Robert Wood Johnson Foundation, the program featured multidisciplinary grantee teams from across the United States. The Institute for Bioethics received RWJ support to oversee Ethical, Legal and Social Issues (ELSI) analysis for the project. Learn More
The Markle Foundation - Markle Connecting for Health Common Framework for Private and Secure Health Information Exchange.
University of Miami faculty contributed to the Markle Connecting for Health Policy Subcommittee and the Personal Health Technology Council, which led to the Markle Connecting for Health Common Framework for Private and Secure Health Information Exchange, published in 2006.
The Privacy / Data Protection Project
The Privacy / Data Protection Project, which ended in 2005, was a public education effort focusing on information protections in the health sector, particularly the HIPAA Privacy Rule and Security Rule. The Project’s HIPAA courses have been adapted and now are available as part of the CITI Program IPS series.
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