This is an overview of issues in ethics and health information technology. It is written for clinicians, researchers and students interested in the importance and scope of such technology.
The first collection of case studies in ethics and biomedical informatics.
Goodman KW, ed., Ethics, Computing and Medicine: Informatics and the Transformation of Health Care. New York and Cambridge: Cambridge University Press, 1998. Published also as Etica, Infonrmatica e Medicine: L’informatica e la transformazione dell’assistenza sanitaria, Italian translation by Eugenio Santoro, Rome: Il Pensiero Scientifico Editore, 1999. Translated into Japanese by Itai Takashi as 医療IT化と生命倫理 報ネットワーク社会における医療現場の変容, Kyoto, 2009.
This edited collection is apparently the first volume devoted to ethics and health information technology.
SELECTED PAPERS
Petersen C, Smith J, Freimuth RR, Goodman KW, Jackson GP, Kannry J, Liu H, Madhavan S, Madhavan S, Sittig DF, Wright A. Recommendations for the safe, effective use of adaptive CDS in the US healthcare system: an AMIA position paper, Journal of the American Medical Informatics Association 2021; ocaa319, https://doi.org/10.1093/jamia/ocaa319
Goodman KW. Bioethics and Precision Medicine Focus on Information Technology. In: Phillips KA, Racz, LA and Yamamoto DP, eds. Total Exposure Health: An Introduction. Boca Raton, FL: CRC Press; 2020. pp. 281–9.
Walsh CG, Chaudhry B, Dua P, Goodman KW, Kaplan B, Kavuluru R, Solomonides A, Subbian V. Stigma, biomarkers, and algorithmic bias: recommendations for precision behavioral health with artificial intelligence, JAMIA Open, 2020;1(2):9-15. https://doi.org/10.1093/jamiaopen/ooz054
Goodman KW, Zandi D, Reis A, Vayena E. Balancing risks and benefits of artificial intelligence in the health sector. Bulletin of the World Health Organization 2020;98:230-230A. doi: http://dx.doi.org/10.2471/BLT.20.253823
Rubinstein PF, Middleton B, Goodman KW, Lehmann CU. Commercial interests in continuing medical education: Where do electronic health records fit? Academic Medicine 2020 Feb 11. doi: 10.1097/ACM.0000000000003190. [Epub ahead of print]. PMID: 32079950.
Harle CA, Golembiewski EH, Rahmanian KP, Brumback B, Krieger JL, Goodman KW, Mainous AG, Moseley RE. Does an interactive trust-enhanced electronic consent improve patient experiences when asked to share their health records for research? A randomized trial. Journal of the American Medical Informatics Association 2019;26(7):620-629. doi.org/10.1093/jamia/ocz015
Miklin DJ, Vangara SS, Delamater AM, Goodman KW. Understanding of and barriers to electronic health records in a culturally diverse pediatric population. JMIR Medical Informatics 2019;7(2):e11570. doi:10.2196/11570
Lehmann CU, Petersen C, Bhatia H, Berner ES, Goodman KW. Advance directives and code status information exchange: a consensus proposal for a minimum set of attributes. Cambridge Quarterly of Healthcare Ethics 2019;28(1):178-185. doi.org/10.1017/S096318011800052X
Malin B, Goodman KW. Between access and privacy: Challenges in sharing health data. International Medical Informatics Association, IMIA Yearbook of Medical Informatics 2018;27:55-59. doi: dx.doi.org/10.1055/s-0038-1641216
Petersen C, Berner ES, Embi PJ, Fultz Hollis K, Goodman KW, Koppel R, Lehmann CU, Lehmann H, Maulden SA, McGregor KA, Solomonides A, Subbian V, Terrazas E, Winkelstein P. AMIA’s code of professional and ethical conduct. Journal of the American Medical Informatics Association 2018;25(11):1579–1582. doi.org/10.1093/jamia/ocy092
Goodman KW. Health information technology as a universal donor to bioethics education. Cambridge Quarterly of Healthcare Ethics 2017;26(2):342-347. doi: 10.1017/S0963180116000943
Fiore RN, Goodman KW. Precision medicine ethics: selected issues and developments in next-generation sequencing, clinical oncology, and ethics. Current Opinions in Oncology 2016;28(1):83-7. doi: 10.1097/CCO.0000000000000247
Dhiman GJ, Amber KT, Goodman KW. Comparative outcome studies of clinical decision support software: limitations to the practice of evidence-based system acquisition. Journal of the American Medical Informatics Association 2015;22(e1):e13-20. doi: 10.1093/jamia/ocu033
Goodman KW. Addressing ethical issues in health information technology. Cambridge Quarterly of Healthcare Ethics 2015;24:252-54. doi: 10.1017/S0963180114000577
Goodman KW, Cushman R, Miller RA. Ethics and health informatics: Users, standards, and outcomes. In Shortliffe, EH, et al., eds., Biomedical Informatics: Computer Applications in Health Care and Biomedicine. Fourth Edition. New York: Springer, 2014; pp. 329-353. doi: 10.1007/0-387-36278-9_10
Goodman KW, Meslin EM. Ethics, information technology and public health: Duties and challenges in computational epidemiology. In Magnuson, JA, Fu, PC, eds., Public Health Informatics and Information Systems, Second Edition, London: Springer-Verlag, 2014; 191-209 (wholly revised from 1st Ed., 2003).
Massoudi BL, Goodman KW, Gotham IJ, Holmes JH, Lang L, Miner K, Potenziani DD, Richards J, Turner AM, Fu PC. An informatics agenda for public health: summarized recommendations from the 2011 AMIA PHI Conference. Journal of the American Medical Informatics Association 2012;9(5):688-695. doi: 10.1136/amiajnl-2011-000507
Goodman KW, Berner ES, Dente MA, Kaplan B, Koppel R, Rucker D., Sands DZ, Winkelstein P. Challenges in ethics, safety, best practices, and oversight regarding HIT vendors, their customers, and patients: a report of an AMIA special task force. Journal of the American Medical Informatics Association 2011;18(1):77-81. https://doi.org/10.1136/jamia.2010.008946
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