Publications and Videos

This page lists selected publications and videos by Institute for Bioethics and Health Policy faculty. Where possible, access to the publication and information about the presentation is provided. 

Click on any of the years listed below to view the list of publications or videos for that specific year:

health informatics pic

 

2023 2022 2021 2020 2019 2018 2017 2016  

2023 2022 2021 2020 2018 2016

Publications

2023

  • Arana J, Baer S, Boulos N, Brosco JP, Dima G, Jackson D, Ocasio-Stoutenburg L, Sale AC, Schladant M, Triana R. Toward an Equity-Driven Conceptual Model of COVID-19 Vaccine Decision-Making for People with IDD. Developmental Disabilities Network Journal, 2023;3(2). https://digitalcommons.usu.edu/ddnj/vol3/iss2/10/
  • Armstrong D, Brosco JP, Flores G. Urgent Priorities for Optimizing the Health, Health Care, and Well-Being of Children. Develepmental Disabilities Network Journal, 2023, https://firstfocus.org/wp-content/uploads/2022/12/BigIdeas2023.pdf
  • Champney TH. Dignity for the Deceased: The Need for Federal Regulations. MedpageToday, July 16, 2023. https://www.medpagetoday.com/opinion/second-opinions/105483
  • Champney TH, Cornwall J, Hildebrandt S, Goodman KW. Ethical concerns surrounding artificial intelligence in anatomy education: Should AI human body simulations replace donors in the dissection room? Anatomical Sciences Education 2023;00:1-7. https://doi.org/10.1002/ase.2335
  • Salerno J, Coughlin SS, Goodman KW, Hlaing WM. Current ethical and social issues in epidemiology. Annals of Epidemiology, 2023;80:37-42. https://doi.org/10.1016/j.annepidem.2023.02.001
  • Goodman KW, Ross SR. Avoiding Unethical Altruism in Global Health: Revisiting Ethics Guidelines for International Rotations for Medical Residents. Journal of Graduate Medical Education, 2023;15(1):19-23. https://doi.org/10.4300/JGME-D-22-00455.1
  • Adhikari S, Aggarwal S, Bivins A, Bohrerova Z, Bowes DA, Cohen A, Darling A, Driver EM, Duvallet C, Elnimeiry RA, Goodman KW, Hutchison JM, Kapoor V, Kaya D, Keenum I, Lee LM, Ling F, Maal-Bared R, Mansfeldt C, Sills D, Tiwari A, Vikesland P, Ziels R. Structured Ethical Review for Wastewater-Based Testing in Support of Public Health. Environmental Science & Technology 2023. https://doi.org/10.1021/acs.est.3c04529
  • Goodman KW, Litewka S, Malpani R, Pujari S, Reis A. Global health and big data: The WHO’s artificial intelligence guidance. South African Journal of Science 2023;119:5/6. 
    https://doi.org/10.17159/sajs.2023/14725
  • Atuire S, Jaoko W, Juengst E, Litewka S, Moodley K, Mtande T, Rennie S. Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues. South African Journal  of Science, 2023;119:5/6. 
    https://doi.org/10.17159/sajs.2023/14777

2022

  • Brosco JP, Castellands TH, Gelpi A. Newborn Screening in Latin America: A Window on the Evolution of Health Policy. OBM Genetics 2022; 6(1), doi:10.21926/obm.genet.2201146 
  • Brosco JP. Review of Raz M, How the American Child Welfare System Lost its Way, Bulletin of the History of Medicine 2022;96:145-146.DOI: 10.1353/bhm.2022.0010
  • Chung WK, Berg JS, Botkin JR, Brenner SE, Brosco JP et al. Newborn screening for neurodevelopmental diseases: Are we there yet? American Journal of Medical Genetics 2022:1-9. https://doi.org/10.1002/ajmg.c.31988
  • Schmidt RD, Armstrong FD, Horigian VE, Swilley-Woods G, Alonso B, Jackson D, Natale R, Jent J, Schladant M, Nelson S, Brosco JP. Aiming High: Monitoring Population Level Indicators of Child Wellbeing as a Goal of Community-Academic Partnerships. Maternal and Child Health Journal 2022. https://doi.org/10.1007/s10995-021-03333-x
  • Cohen T. The Next Pandemic: A Pragmatic and Ethical Discussion About the Looming Threat of Antibiotic Resistance. Voices in Bioethics 2020, Vol. 8. https://journals.library.columbia.edu/index.php/bioethics/article/view/9509
  • Korngiebel DM, Solomonides A, Goodman KW. Ethical and Policy Issues. In Cohen TA, Patel VL, Shortliffe EH, eds., Intelligent Systems in Medicine and Health: The Role of AI. Cognitive Informatics in Biomedicine and Healthcare series. Cham: Springer Nature 2022, pp. 505-525.
  • Lehmann CU, Fultz Hollis K, Petersen C, DeMuro PR, Subbian V, Koppel R, Solomonides AE, Berner ES, Pan EC, Adler-Milstein J, Goodman KW. Selecting venues for AMIA events and conferences: guiding ethical principles. Journal of the American Medical Informatics Association 2022 May 17:ocac073; 10.1093/jamia/ocac073. Epub ahead of print. PMID: 35579334.
  • Litewka S, Moreno JD. Is Russia’s Research Ethics Culture Reliable? Ethics and Human Research 2022; 44:1-4. https://onlinelibrary.wiley.com/doi/abs/10.1002/eahr.500145

2021

  • Brosco JP, Hinton CF. Following Patients With Inborn Errors of Metabolism: What Do We Value and How Do We Know? Pediatrics 2021;148(2):e2021051020.https://doi.org/10.1542/peds.2021-051020
  • Ramos P, Ayers K, Brosco J, Griffen A, Hewitt A, Riddle I, Rodgers R, Rudolph D,  van Stone M. The COVID-19 Pandemic and People with Disabilities: Primary Concerns, the AUCD Network Response, and Needs for the Future. Association of University Centers on Disabilities, 2021. https://www.aucd.org/docs/publications/20201703_COVID19_Pandeminc_PWD.pdf
  • Brodar C, Muller C, Brodar KE, Brosco JP, Goodman KW. Ethics Education in COVID-19: Preclinical Medical Students’ Approach to Ventilator Allocation. Cureus 2021;13(8): e16976. http://doi:10.7759/cureus.16976
  • Muller C, Brodar C, Brodar KE, Goodman KW, Brosco JP. Medical Student Choices Regarding Ventilator Allocation for People With Disabilities. Journal of Intellectual and Development Disability 2021;59(6):441-445. http://doi.org/10.1352/1934-9556-59.6.441. 
  • Llano G, Kumnick A, Bryant, J, Torres Nancy MS, Brosco JP, Schenker, M. Changing Needs of Individuals with Disabilities in the Time of COVID-19 as Observed by a Family Navigation Program in Miami, FL. Developmental Disabilities Network Journal 2020 1:6. https://doi.org/10.26077/1722-a515
  • Dimenstein K, Sosenko JM, Goodman KW. Do-It-Yourself Diabetes Management: Perspectives of a Patient, a Physician, and an Ethicist. Clinical Diabetes 2021; http://doi.org/10.2337/cd20-0058
  • Hlaing WM, Kushch NA, Wells AE, Goodman KW. Common topics discerned in ethics in epidemiology and public health syllabi: in-depth review. Annals of Epidemiology 2021;60:31-34. https://doi.org/10.1016/j.annepidem.2021.04.014
  • Gershengorn HB, Holt GE, Rezk A, Delgado S, Shah N, Arora A, Colucci LB, Mora B,Iyengar RS, Lopez A, Martinez BM, West J, Goodman KW, Kett DH, Brosco JP. Assessment of Disparities Associated With a Crisis Standards of Care Resource Allocation Algorithm for Patients in 2 US Hospitals During the COVID-19 Pandemic. JAMA Network Open 2021;4(3):e214149. doi:10.1001/jamanetworkopen.2021.4149
  • Golembiewski EH, Mainous AG, Rahmanian K, Brumback B, Rooks BJ, Krieger JL, Goodman KW, Moseley RE, Harle CA. An electronic tool to support patient-centered broad consent: A multi-arm randomized clinical trial in family medicine. Annals of Family Medicine 2021;19(1):16-23. https://doi.org/10.1370/afm.2610
  • Subbian V, Solomonides A, Clarkson M, Rahimzadeh VN, Petersen C, Schreiber R, DeMuro PR, Dua P, Goodman KW, Kaplan B, Koppel R, Lehmann CU, Pan E, Senathirajah Y. Ethics and Informatics in the Age of COVID-19: Challenges and Recommendations for Public Health Organization and Public Policy. Journal of the American Medical Informatics Association 2021;28(1):184-189. doi: 10.1093/jamia/ocaa188
  • Cañete R, Goodman KW. Cuba-US collaboration: The pandemic imperative. MEDICC Review 2021;23(1):89. https://doi.org/10.37757/MR2021.V23.N1.3
  • Petersen C, Smith J, Freimuth RR, Goodman KW, Jackson GP, Kannry J, Lie H, Madhavan S, Sittig DF, Wright A. Recommendations for the safe, effective use of adaptive CDS in the US healthcare system: an AMIA position paper. Journal of the American Medical Informatics Association 2021;28(4):677-84. doi: 10.1093/jamia/ocaa319
  • Litewka S, Moreno JD. Covid-19 in Argentina and the Abuse of Bioethics. The Hastings Center blog 2021. Available from: https://thehastingscenter.org/covid-19-in-argentina-and-the-abuse-of-bioethics/

2020

  • House SA, Shubkin CD, Lahey T, Brosco JP, Lanto J. COVID-19 Trial Enrollment for Those Who Cannot Consent: Ethical Challenges Posed by a Pandemic. Pediatrics. 2020;146(5):e2020010728 doi: https://doi.org/10.1542/peds.2020-010728
  • Rajagopal AS, Champney TH. Teaching Without Harm: The Ethics of Performing Posthumous Procedures on the Newly Deceased. Cureus. 2020;12(12):e11855. doi: 10.7759/cureus.11855
  • Hildebrandt S, Champney TH. Ethical Considerations of Body Donation. In: Chan L.K., Pawlina W. (eds) Teaching Anatomy. Springer, Cham; 2020. pp. 215–22. https://doi.org/10.1007/978-3-030-43283-6_23
  • Champney TH, Broadfield DC, Vargas EH, Hoodiman DR. Establishing and Operating a Body Donation Program. In: Chan L.K., Pawlina W. (eds) Teaching Anatomy. Springer, Cham; 2020. pp. 207-14. https://doi.org/10.1007/978-3-030-43283-6_22.
  • Goodman KW. Bioethics and Precision Medicine Focus on Information Technology. In: Phillips KA, Racz, LA and Yamamoto DP, eds. Total Exposure Health: An Introduction. Boca Raton, FL: CRC Press; 2020. pp. 281–9.
  • Subbian V, Solomonides A, Clarkson M, Rahimzadeh VN, Petersen C, Schreiber R, DeMuro PR, Dua P, Goodman KW, Kaplan B, Koppel R, Lehmann CU, Pan E, Senathirajah Y. Ethics and Informatics in the Age of COVID-19: Challenges and Recommendations for Public Health Organization and Public Policy. Journal of the American Medical Informatics Association, July 28, 2020, ocaa188, https://doi.org/10.1093/jamia/ocaa188
  • Goodman KW, Zandi D, Reis A, Vayena E. Balancing risks and benefits of artificial intellingence in the health sector. Bulletin of the World Health Organization 2020;98:230-230A. http://dx.doi.org/10.2471/BLT.20.253823
  • Rubinstein PF, Middleton B, Goodman KW, Lehmann CU. Commercial interests in continuing medical education: Where do electronic health records fit? Academic Medicine 2020 Feb 11. 10.1097/ACM.0000000000003190. PMID: 32079950.
  • Goodman KW. Ethics and health informatics. International Yearbook of Medical Informatics. 2020. http://dx.doi.org/10.1055/s-0040-1701966
  • Civantos FJ, Leibowitz JM, Arnold DL, Stubbs VC, Gross JH, Thomas GR, Sargi Z, Casiano RR, Franzmann EJ, Weed D, Perez C, Samuels M, Goodman KW, Goodwin WJ. Ethical surgical traige of patients with head and neck cancer during the COVID-19 pandemic. Head & Neck 2020;42:1423-1447, http://doi.org/10.1002/hed.26229
  • Walsh CG, Chaudhry B, Dua P, Goodman KW, Kaplan B, Kavuluru R, Solomonides A, Subbian V. Stigma, biomarkers, and algorithmic bias: recommendations for precisions behavioral health with artificial intelligence. JAMIA Open. 2020 Jan 22; 10.1093/jamiaopen/ooz054
  • Litewka SG, Heitman E. Latin American healthcare systems in times of pandemic. Developing World Bioethics 2020;20:69-73. https://doi.org/10.1111/dewb.12262

2019

  • Brosco JP. Identifying the right outcomes to measure for children with medical complexity. Developmental Medicine & Child Neurology. 2019 Sep;61(9):1000. DOI: 10.1111/dmcn.14146.    
  • Lloyd-Puryear M, Brower A, Berry SA, Brosco JP, Bowdish B, Watson MS. Foundation of the Newborn Screening Translational Research Network and its tools for research. Genetics in Medicine. 2019 Jun;21(6):1271-9. DOI: 10.1038/s41436-018-0334-8.  
  • Goldenberg AJ, Lloyd-Puryear M, Brosco JP, Therrell B, Bush L, Berry S, et al. Including ELSI research questions in newborn screening pilot studies. Genetics in Medicine. 2019 Mar;21(3):525-33.DOI: 10.1038/s41436-018-0101-x.  
  • Champney T. A Bioethos for Bodies: Respecting a Priceless Resource. Anatomical Sciences Education. 2019;12(4):432-434.DOI: 10.1002/ase.1855 
  • Champney T, Hildebrandt S, Gareth Jones D, Winkelmann A. BODIES R US: Ethical Views on the Commercialization of the Dead in Medical Education and Research. Anatomical Sciences Education. 2019 May;12(3):317-25. DOI: 10.1002/ase.1809
  • França K, Litewka S. Controversies in off‐label prescriptions in dermatology: the perspective of the patient, the physician, and the pharmaceutical companies. International Journal of Dermatology. 2019 Jul;58(7):788-94. DOI: 10.1111/ijd.14222
  • França KP, Kumar A, Castillo D, Jafferany M, Hyczy da Cista Neto M, Damevksa K, Wollina U, Lottie T. Trichotillomania (hair pulling disorder): Clinical characteristics, psychosocial aspects, treatment approaches, and ethical considerations. Dermatologic Therapy. 2019 Jul;32(4):e12622. DOI: 10.1111/dth.12622 
  • Gressick K, Gelpi A, Chanroo T. Zika and abortion in Brazilian newspapers: how a new outbreak revived an old debate on reproductive rights. Sexual and Reproductive Health Matters. 2019 May 31;27(2):20-3. DOI: 10.1080/26410397.2019.1586818
  • Kareff SA, McNulty M, Goodman KW, Agarwal G. Introducing first-year dual-degree medicine and public health students to ethics and professionalism. Journal of Hospital Ethics. 2019;6(2):95-100.
  • Harle CA, Golembiewski EH, Rahmanian KP, Brumback B, Krieger JL, Goodman KW, Mainous AG, Moseley RE. Does an interactive trust-enhanced electronic consent improve patient experiences when asked to share their health records for research? A randomized trial. Journal of the American Medical Informatics Association. 2019 Jul 1;26(7):620-9. DOI: 10.1093/jamia/ocz015
  • Holt GE, Goodman KW, Olvey SE, Kett D. Nonstandard do-not-resuscitate orders. Current Opinion in Anaesthesiology. 2019 Apr;32(2):179-83. DOI: 10.1097/ACO.0000000000000690 
  • Lehmann CU, Petersen C, Bhatia H, Berner ES, Goodman KW. Advance directives and code status information exchange: a consensus proposal for a minimum set of attributes. Cambridge Quarterly of Healthcare Ethics. 2019;28(1):178-185. DOI: 10.1017/S096318011800052X 
  • Miklin DJ, Vangara SS, Delamater AM, Goodman KW. Understanding of and Barriers to Electronic Health Record Patient Portal Access in a Culturally Diverse Pediatric Population. JMIR Medical Informatics. 2019 Apr 26;7(2):e11570. DOI: 10.2196/11570 
  • Zandi D, Reis A, Vayena E, Goodman K. New ethical challenges of digital technologies, machine learning and artificial intelligence in public health: a call for papers. Bulletin of the World Health Organization. 2019 Jan 1;97(1):2. DOI: 10.2471/BLT.18.227686 
  • Hlaing WM, Saddemi JL, Goodman KW. Expanding ethics curriculum resources: American College of Epidemiology's syllabus collection project. Annals of Epidemiology. 2019 Oct;38:1-3. DOI: 10.1016/j.annepidem.2019.08.009 
  • Litewka S. "Research Tourism” in the Caribbean. Caribbean Network of Research Ethics Commitees (CANREC) Bulletin. 2019, Vol 1 No 1; pp.9-10. Available from: https://www.researchgate.net/publication/337740189_Caribbean_Network_of_Research_Ethics_Committees_CANREC_Bulletin
  • Vizcarrondo FE. Medical Futility in Pediatric Care. The National Catholic Bioethics Quarterly. 2019;19(1):105-20. DOI: 10.5840/ncbq20191919

2018

  • Brosco JP. Whose Odyssey Is It? Family-Centered Care in the Genomic Era. Hastings Center Report. 2018; 48:S20-S22. DOI: 10.1002/hast.879.
  • Zuckerman AE, Badawi D, Brosco JP, et al. The Role of Quality Measures to Promote Long-Term Follow-up of Children Identified by Newborn Screening Programs, Presented by the Follow-up and Treatment Workgroup to the Advisory Committee on Heritable Disorders in Newborns and Children. 2018. https://www.hrsa.gov/sites/default/files/hrsa/advisory-committees/heritable-disorders/reports-recommendations/reports/role-of-quality-measures-in-nbs-sept2018-508c.pdf.
  • Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA, and members of the NSIGHT Ethics and Policy Advisory Board. Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies. Hastings Center Report. 2018; 48(Suppl 2):S2-S6. DOI:10.1002/hast.874. (Brosco J is an author as a “member” of the NSIGHT group)
  • Petersen C, Berner ES, Embi PJ, Fultz Hollis K, Goodman KW, Koppel R, Lehmann CU, Lehmann H, Maulden SA, McGregor KA, Solomonides A, Subbian V, Terrazas E, Winkelstein P. AMIA’s code of professional and ethical conduct. Journal of the American Medical Informatics Association 2018;25(11):1579–1582. doi.org/10.1093/jamia/ocy092
  • Brosco JP, Pulgaron E, Vanderbilt DL, Macias M, Mathew MS, Blum NJ. The interprofessional/family-centered-care observation rubric (i-for): results of a multicenter study of a new measure of educational outcomes. Maternal and Child Health Journal. 2018;22(10):1384-1392. DOI: 10.1007/s10995-018-2591-1
  • Wo SR, Largent EA, Brosco J, Rosenberg AR, Goodman KW, Lantos JD. Should foreigners get costly lifesaving treatments in the United States? Pediatrics. 2018 Nov;142(5):e20180175. DOI: 10.1542/peds.2018-0175.  
  • Goodman KW, Birnbach DJ. Ethics and plastic surgery practice. In: Cohen M, Thaller S, eds., The Unfavorable Result in Plastic Surgery: Avoidance and Management, 4th ed., New York: Thieme, 2018, pp. 25-30.
  • Holt GE, Kett D, Goodman KW. More on an Unconscious Patient with a DNR Tattoo. New England Journal of Medicine. 2018;378:875-877. DOI: 10.1056/NEJMc1800052 (correspondence).
  • Malin B, Goodman K. Between Access and Privacy: Challenges in Sharing Health Data. Yearbook of Medical Informatics. 2018 Aug;27(01):055-9. DOI: 10.1055/s-0038-1641216  
  • Kaye J,  Terry SF, Juengst E, Coy S, Harris J, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R,  Kato K, Rial-Sebbag E, Marshall P, Koenig B,Cambon-Thomsen A. Including all voices in international data-sharing governance. Human Genomics. 2018;12(13):1-6. DOI: 10.1186/s40246-018-0143-9.
  • Isasi R, Mastronardi C, Golder M, Allan D, Walker M, Halpenny M, Yang L, Elmoazzen H, Chargé S. Assessing Opportunities and Challenges for Establishing a National Program to Distribute Cord Blood for Research.Transfusion. 2018;58(7):1726-1731. DOI: 10.1111/trf.14602
  • Bell J, Bordag, N, Borry P, Bovenberg J, Dagher G, Grewal J, and Hoppe N, Isasi, R, Kaye J, Knoppers B, Kwisda K, Morrison M, Néron A,  Nys H, Oberauner-Wappis L, Rial‐Sebbag, E, Sandor J, Shabani M, Tournay V, Varju M, Zatloukal K, Governing Stem Cells: Regenerative Medicine in Europe - The Vision and Recommendations From the EUCelLEX Project (December 21, 2018). Governing Stem Cells: Regenerative Medicine in Europe,The Vision and Recommendations From the EUCelLEX Project, Edited by Emmanuelle Rial-Sebbag (EUCelLEX Consortium), December 2018. Available at https://ssrn.com/abstract=3347724
  • Moreno JD, Litewka SG. Sonic attacks: How a medical mystery can sow distrust in foreign governments. The Conversation [Internet]. 2018;06 27; Available from https://theconversation.com/sonic-attacks-how-a-medical-mystery-can-sow-distrust-in-foreign-governments-98417.

2017

  • Brosco JP, Feudtner C. Shared decision making for children with Trisomy 13 and 18. JAMA Pediatrics. 2017;171(4):324-325. DOI: 10.1001/jamapediatrics.2016.4943
  • Champney TH. Authorship guidelines for anatomical studies. Clinical Anatomy. 2017 May;30(4):429. DOI: 10.1002/ca.22838
  • Champney TH. The lack of memorial services in for-profit and non-profit willed body companies in the United States. In: Štrkalj G, Pather N, eds., Commemorations and Memorials: Exploring the Human Face of Anatomy [Internet]. Singapore: World Scientific Publishing, 2017, pp.: 41-48. DOI: 10.1142/9789813143159_0004     
  • Kahn PA, Champney TH, Hildebrandt S. The incompatibility of the use of unclaimed bodies with ethical anatomical education in the United States. American Association of Anatomists. 2017 Mar;10(2):200-1. DOI: 10.1002/ase.1672 (Correspondence) 
  • França K, Lotti T. The history of medicine. Wiener Medizinische Wochenschrift. 2017  Oct;167(S1):1. DOI: 10.1007/s10354-017-0596-9
  • Goodman KW. Health information technology as a universal donor to bioethics education. Cambridge Quarterly of Healthcare Ethics. 2017;26(2):342-347. DOI: 10.1017/S0963180116000943.
  • Holt GE, Sarmento B, Kett D, Goodman KW. An unconscious patient with a DNR tattoo. New England Journal of Medicine. 2017;377(22):2192-2193. DOI: 10.1056/NEJMc1713344 (Correspondence)
  • Salerno J, Knoppers BM, Lee LM, Hlaing WM, Goodman KW. Ethics, big data and computing in epidemiology and public health. Annals of Epidemiology. 2017;27:297-301. DOI: 10.1016/j.annepidem.2017.05.002. 
  • Tenenbaum JD, Goodman KW. Beyond the Genetic Information Nondiscrimination Act: ethical and economic implications of the exclusion of disability, long-term care and life insurance. Personalized Medicine. 2017;14(2):153-157. DOI: 10.2217/pme-2016-0078.
  • Kareff S, Goodman KW. Ethics in MD/MPH curricula: A case study describing unique considerations for dual-degree students. MedEdPublish. 2017; 6(2): 2. DOI: 10.15694/mep.2017.000064.
  • Knoppers BM, Isasi R, Caulfield T, Kleiderman E, Bedford P, Illes J, Ogbogu U, Ravitsky V, Rudnick M. Human gene editing: revisiting Canadian policy. npj Regenerative Medicine. 2017, 2:3;1-2. DOI: 10.1038/s41536-017-0007-2.
  • Isasi R. Bioethics: Justice in genomics. Nature. 2017; Nov;551(7680):296-7. DOI: 10.1038/551296a
  • Knoppers BM, Leader A, Hume S, Shoubridge EA, Isasi R, Noohi F, et al. Mitochondrial Replacement Therapy: The Road to the Clinic in Canada. Journal of Obstetrics and Gynaecology Canada. 2017 Oct;39(10):916-8. PMID: 28733061. DOI: 10.1016/j.jogc.2017.05.007. 
  • Ormond KE, Mortlock D (Co-Chairs), Scholes DT, Bombard Y, Brody LC, Faucett WA, Garrison NA, Hercher L, Isasi R, Middleton A, Musunuru K, Shriner D, Virani A, Young CE. Human Germline Genome Editing. The American Journal of Human Genetics. 2017 Aug;101(2):167-76.DOI: 10.1016/j.ajhg.2017.06.012.  
  • Kim J-H, Kurtz A, Yuan B-Z, Lomax G, Loring J, Crook J, Ju J-H, Clarke L, Inamdar MS, Pera M, Firpo M, Sheldon M, Rahman N, O'Shea O, Pranke P, Zhou Q, Isasi R, Rungsiwiwut R, Kawamata S, Oh S, Ludwig T, Masui T, Novak T, Takahashi T, Fujibuchi W. “Report of the International Stem Cell Banking Initiative workshop activity: current hurdles and progress in seedstock banking of human pluripotent stem cells”. Stem Cells Translational Medicine. 2017 Nov;6(11):1956-1962. DOI: 10.1002/sctm.17-0144
  • Illes J, Sipp J, Kleiderman E, Benjaminy S, Isasi R, Lomax G., Master Z, McCormick J, Ogbogu U, Ravitsky V, Robillard J, Rossi F, Wilson B, Zarzeczny A. “A Blueprint for the Next Generation of ELSI Research, Training, and Outreach in Regenerative Medicine”. NPJ Regenerative Medicine. 2017 July 5;2:21. DOI: 10.1038/s41536-017-0026-z.
  • Isasi R. Human Genome Editing: Reflections on Policy Convergence and Global Governance. Genomeditierung – Ethische, rechtliche und kommunikations – wissenschaftliche Aspekte im Bereich der molekularen Medizin un Nutzplanzenzüchtung. Zeitschrift für Medizin-Ethik-Recht – ZfMER (Editor) 1(Jg.8) (2017). DOI: 10.5771/9783845291901-287.
  • Knoppers BM, Isasi R, Caulfield T, Kleiderman E, Bedford P, Illes J, et al. Human gene editing: revisiting Canadian policy. NPJ Regenerative Medicine. 2, 3 (2017). PMID: 29302340 DOI: 10.1038/s41536-017-0007-2 
  • Deakin ND, Cronin T, Trafford P, Olvey S, Roberts I, Mellor A, Hutchinson PJ. Concussion in motor sport: A medical literature review and engineering perspective. Journal of Concussion. 2017; 1: January 1, 2017, DOI: 10.1177/2059700217733916
  • Diekema DS, Leuthner SR, Vizcarrondo FE, eds.  Bioethics Resident Curriculum: Case-Based Teaching Guides. Elk Grove Village, IL: American Academy of Pediatrics, 2017. Available at https://www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Section-on-Bioethics/Pages/Bioethics-Case-Based-Teaching-Guides-for-Resident-Training.aspx.

2016

  • Brosco JP. Child Rights and Clinical Bioethics: Historical Reflections on Modern Medicine and Ethics. Perspectives in Biology and Medicine. 2016;58(3):356-64. DOI: 10.1353/pbm.2016.0003. 
  • Kemper AR, Brosco JP, Comeau AM, Green NS, Grosse SD, Jones E, Kwon JM, Lam WKK, Ojodu J, Prosser LA, Tanksley S. Newborn screening for X-linked adrenoleukodystrophy: evidence summary and advisory committee recommendation. Genetics in Medicine. 2017;19(1):121-26. DOI: 10.1038/gim.2016.68. PMID: 27337030.
  • Brosco JH, Brosco JP. Zika as a Catalyst for Social Change. Pediatrics. 2016;138(6). pii: e20162095. PMID: 27940708.
  • Brosco JP,  Bona A. Changes in academic demands and attention-deficit/hyperactivity disorder in young children. JAMA Pediatrics. 2016;170(4):396-397. DOI: 10.1001/jamapediatrics.2015.4132.
  • Champney TH. The business of bodies: Ethical perspectives on for‐profit body donation companies. Clinical Anatomy. 2016 Jan 1;29(1):25-9. DOI: 10.1002/ca.22643
  • Fiore RN. Bioethics: Environmental, Encyclopedia of Global Bioethics. Springer International Publishing. 2016 1-12 DOI: 10.1007/978-3-319-05544-2_466-1
  • Fiore RN, Goodman KW. Precision medicine ethics: selected issues and developments in next generation sequencing, clinical oncology and ethics. Current Opinion in Oncology. 2016;28(1):83-7. DOI: 10.1097/CCO.0000000000000247
  • Cañete R, Brito K, Guilhem D, Goodman KW. Perception and Satisfaction with Received Information Regarding Treatment for Intestinal Parasitic Infection in Cuban Patients. West Indian Medical Journal. 2016;65(3):519. DOI: 10.7727/wimj.2014.307 
  • Goodman KW. Ethics, Medicine, and Information Technology: Intelligent Machines and the Transformation of Health Care. Cambridge: Cambridge University Press, 2016.
  • Goodman KW. Ethical and legal issues in decision support. In: Berner ES, ed., Clinical Decision Support Systems: Theory and Practice, Third Edition. New York: Springer, 2016, pp.: 131-146.
  • Isasi R, Kleiderman E, Knoppers BM. Editing policy to fit the genome? Science. 2016;351(6271):337-9. DOI: 10.1126/science.aad6778
  • Isasi R, Rahimzadeh V, Charlebois K. Uncertainty and innovation: Understanding the role of cell-based manufacturing facilities in shaping regulatory and commercialization environments. Applied Translational Genomics. 2016;11:27–39. DOI: 10.1016/j.atg.2016.11.001
  • Isasi R, Zuchner SL, Cañete R.  Genetics boosts US–Cuban links. Nature. 2016;539:357 (Correspondence). DOI: 10.1038/539357d
  • Isasi R. “Regulating Human Genetics Research in Latin America: A race to the top or a race together?” Revista Iberoamericana de Bioética. 2016;1:1-10. DOI: 10.14422/rib.i01.y2016.006. 
  • Litewka S. Mala Conducta Científica: Un fenómeno global y atemporal. In: Ruiz de Chávez, MH., ed.,  Temas Selectos de Conbioética. Mexico, DF: Comisión Nacional de Bioética/Secretaría de Salud, 2016, pp.: 176-183.

2015

  • Brosco JP. Conflicts in family-centered pediatric care for patients with autism. AMA Journal of Ethics. 2015;17(4):299-304. DOI: 10.1001/journalofethics.2015.17.4.ecas1-1504.
  • Reynolds KL, Cowden JD, Brosco JP, Lantos JD. When a Family Requests a White Doctor. Pediatrics. 2015;136(2):381-6. DOI: 10.1542/peds.2014-2092.
  • Brosco JP, Grosse SD, Ross LF. Universal State Newborn Screening Programs Can Reduce Health Disparities. JAMA Pediatrics. 2015;169(1):7-8. DOI: 10.1001/jamapediatrics.2014.2465.
  • Dhiman GJ, Amber KT, Goodman KW. Comparative outcome studies of clinical decision support software: limitations to the practice of evidence-based system acquisition. Journal of the American Medical Informatics Association 2015;22(e1):e13-20. doi: 10.1093/jamia/ocu033
  • Goodman KW. Addressing ethical issues in health information technology. Cambridge Quarterly of Healthcare Ethics 2015;24:252-54. doi: 10.1017/S0963180114000577
  • Miklin DJ, Fiore RN. fMRI Imaging and decision making in vegetative patients: Ethics, technology, and welfare. American Journal of Bioethics Neuroscience. 2015;3;6(2):49-51. DOI: 10.1080/21507740.2015.1026001.
  • Litewka S, Goodman KW. Pediatric research in Latin America: Focus on governance and populations. Asian Bioethics Review. 2015;7(2):179-187. DOI: 10.1353/asb.2015.0014.

2014

  • Goodman KW, Cushman R, Miller RA. Ethics in Biomedical and Health Informatics: Users, Standards, and Outcomes. In: Shortliffe E., Cimino J. (eds) Biomedical Informatics. Springer, London. 2014. pp 329-353 https://doi.org/10.1007/978-1-4471-4474-8_10

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