Community-State Partnerships to Improve End-of-Life Care, a former Robert Wood Johnson Foundation-supported project, issued a periodical,State Initiatives in End-Of-Life Care,the March 2002 issue of which featured a number of articles on guardianship.
OTHER RESOURCES
American Bar Association Commission on Law and Aging Includes a guardianship state legislative update and summary and the document “Health Care Decision-Making Authority: Health Care Agents vs. Court Appointed Guardians.”
California Law Revision Commission Recommendation: Health Care Decisions for Adults Without Decisionmaking Capacity. Important policy document leading to changes in California law.
The Florida Senate This site provides access to all Florida Statutes. Those of particularly relevance to guardianship and surrogate decision making are Chapter 744 and Chapter 765.
Florida State Guardianship Association Contains information concerning the nature and various types of guardianships. Membership applications and a schedule of conferences and events are also available.
Illinois Office of State Guardian Provides an intake telephone number where information can be obtained concerning many aspects of guardianship, including one module titled “Ethics and guardianship: how do I know how and when to do the right thing?”
National Guardianship Association The National Guardianship Association is a national organization for guardians that provides a wide range of resources. This site includes access to “a model code of ethics for guardians” and a “Standards of Practice” document.
National Center for Ethics in Health Care This Veterans Health Administration site gives policy guidance on the question whether, under HIPAA, clinicians may disclose health information to surrogates. (Answer: Yes, they may.)
Stetson University Center for Excellence in Elder Law The Center "has adopted WINGS [Working Interdisciplinary Network of Guardianship Stakeholders], a national guardianship [education] program incubated by Florida’s courts ..." Focus is on lawyers.