Schiavo Bibliography

Books about Shiavo and the Schiavo Case 

Caplan AL, McCartney JJ, Sisti DA, eds. The Case of Terri Schiavo: Ethics at the End of Life. New York: Prometheus Books, 2006.

Eisenberg JB. The right vs. the Right to Die: Lessons from the Terri Schiavo Case and How to Stop it from Happening Again. New York: Harper Collins, 2005.

Eisenberg JB. Using Terri: The Religious Right’s Conspiracy to Take Away Our Rights. New York: Harper Collins, 2005.

Fuhrman M. Silent Witness: The Untold Story of Terri Schiavo’s Death. New York: Harper Collins, 2005.

Gardner H. The Church and Terri Schiavo: Living the Truth in a Culture of Death. Oklahoma, Mustang: Tate Publishing, 2005.

Gibbs D. Fighting for Dear life: The Untold Story of Terri Schiavo and What it Means for All of Us. Minneapolis: Bethany House, 2006.

Goodman KW, ed.. The Case of Terri Schiavo: Ethics, Politics and Death in the 21st Century. Oxford, New York: Oxford University Press, 2010.

Lynne D. Terri’s Long Story: The Court-Ordered Death of an American Woman. Nashville: WND Books, 2005.

Schiavo M, Hirsh M. Terri: the truth. New York: Dutton, 2006.

Schindler M, Schindler R. A Life That Matters: The Legacy of Terri Schiavo – A lesson for Us All. New York: Warner Books, 1995.

Shepherd L. If that ever happens to me: Making Life and Death Decisions after Terri Schiavo. Chapel Hill: University of North Carolina Press, 2009.

Related Books 

Colby WH. Long Goodby: The Deaths of Nancy Cruzan. Carlsbad: Hay House Inc, 2002.

Colby WH. Unplugged: Reclaiming Our Right to Die in America. New York: AMACOM, 2006.

Jennett B. The Vegetative State: Medical Facts, Ethical and Legal Dilemmas. Cambridge University Press, 2002.

Lavrijsen J. Patients in a Vegetative State: Diagnosis, Prevalence and Long-Term Care in Dutch Nursing Homes. Nijmegen: Quickprint, 2005.

Meisel A, Cerminara K. The Right to Die. New York: Aspen Law & Business, 3rd ed., 2004.

Quinlan JD. Karen Ann’s Mother Remembers: My Joy, My Sorrow. Cincinnati: St. Anthony Messenger Press, 2005.

Scholarly, Peer-reviewed Articles 

Allen MP. The Constitution at the Threshold of Life and Death: A Suggested Approach to Accommodate an Interest in Life and a Right to Die. American University Law Review 2004;53(5):971-1020.

Angell M. After Quinlan: The Dilemma of the Persistent Vegetative State (editorial). New England Journal of Medicine1994; 330(21):1524-1525. 

Angus F, Burakoff R. The Percutaneous Endoscopic Gastrostomy Tube: Medical and Ethical Issues in Placement. The American Journal of Gastroenterology 2003;98(2):272-277.

Annas GJ. "Culture of Life" Politics at the Bedside — the Case of Terri Schiavo. New England Journal of Medicine 2005;352(16):1710-1715.

Blendon RJ, Benson JM, Herrmann MJ. The American Public and the Terri Schiavo Case. Archives of Internal Medicine2005;165(22):2580-2584.

Beaufort I. Patients in a Persistent Vegetative State- A Dutch Perspective. New England Journal of Medicine2005;352(23):2373-2375.

Bloche M.G. Managing Conflict at the End of Life. New England Journal of Medicine 2005;352(23):2371-2375.

Byock L. Patient Refusal of Nutrients and Hydration: Walking the Ever-Finer-Line. The American Journal of Hospice & Palliative Care 1995;12(2):9-13.

Callahan D. Bioethics and the Culture Wars. Cambridge Quarterly of Healthcare Ethics 2005;14:424-431.

Canadian Medical Association Journal (editorial). The Sacred and the Secular: the Life and Death of Terri Schiavo. CMAJ 2005;172(9):1149. Available at

Cantor NL. On Hastening Death Without Violating Legal and Moral Prohibitions. Loyola University Chicago Law Journal2006;37(2):101-125. 

Casarett D, Kapo J, Caplan A. Appropriate Use of Artificial Nutrition and Hydration — Fundamental Principles and Recommendations. New England Journal of Medicine 2005;353(24):2607-2612.

Cassell EJ. The Schiavo Case: A Medical Perspective. Hastings Center Report 2005;35(3):22-23.

Cerminara KL. Critical Essay: Musing on the Need to Convince Some People with Disabilities that End-of-Life Decision-Making Advocates are Not Out to Get Them. Loyola University Chicago Law Journal 2006;37:101-142. 

Cerminara KL. Theresa Marie Schiavo's Long Road to Peace. Death Studies 2006;30(2):101-112. 

Cerminara KL. Collateral Damage: The Aftermath of the Political Culture Wars in Schiavo. Western New England Law Review 2007;29(2):279-308.

Clark AE. The Right to Die: The Broken Road from Quinlan to Schiavo. Loyola University Chicago Law Journal2006;37(2):383-403. 

Coombs M. Schiavo: The Road Not Taken. University of Miami Law Review 2007; 61(3):539-594.

Colby WH. From Quinlan to Cruzan to Schiavo: What Have We Learned? Loyola University Chicago Law Journal2006;37:279-296. 

Cranford R. Facts, Lies and Videotapes: The Permanent Vegetative State and the Sad Case of Terri Schiavo. Journal of Law, Medicine & Ethics 2005; 33(2):363-371.

Didion J. The Case of Theresa Schiavo. The New York Review of Books. June 9, 2005. Available at 

Ditto PH. What Would Terri Want? On the Psychological Challenges of Surrogate Decision Making. Death Studies2006;30(2):135-148.

Diller L. Fall-out of the Pharma Scandals: the Loss of Doctors' Credibility. The Hastings Center Report. 2005;35(3):28-29.

Doukas DJ. "Family" in Advance Care Planning: The Family Covenant in the Wake of Terri Schiavo. Journal of Law, Medicine & Ethics 2005;33(2):372-374.

Dresser R. Schiavo: A Hard Case Makes Questionable Law. Hastings Center Report 2004;34(May-June), 8-9. Available at

Dresser R. Schiavo's Legacy: The Need for an Objective Standard. Hastings Center Report 2005;35(3):20-22.

Eidelman S, Drake S. Not Yet Dead. Ethics and Intellectual Disability 2005;9(1)1-3. 

Finucane TE, Christmas C, Travis K. Tube Feeding in Patients with Advanced Dementia: A Review of the Evidence. Journal of the American Medical Association 1999;282(14):1365-1370.

Fins JJ, Schiff ND. The Afterlife of Terri Schiavo. Hastings Center Report 2005;35(4):8.

Ganzini L, Goy ER, Miller LL, Harvath, TA, Jackson A, Delorit, MA. Nurses' Experiences with Hospice Patients Who Refuse Food and Fluids to Hasten Death. New England Journal of Medicine 2033;349(4):359-365.

Goodman KW. Ethics Schmethics: The Schiavo Case and the Culture Wars. University of Miami Law Review2007;61(3):863-870.

Gostin LO. Ethics, the Constitution, and the Dying Process: The Case of Theresa Marie Schiavo. Journal of the American Medical Association 2005;293(19):2403-2407.

Haig AJ. The Persistent Vegetative State. New England Journal of Medicine 1994; 331(17):1380-1381. 

Hook CC, Mueller PS. The Terri Schiavo Sage: The Making of a Tragedy and Lessons Learned. Mayo Clinic Proceedings 2005;80(11):1449-1460.

Johnson M. Terri Schiavo: A Disability Rights Case. Death Studies 2006;30(2):163-176.

Koch T. The challenge of Terri Schiavo: Lessons for Bioethics. Journal of Medical Ethics 2005;31(7):376-378.

Lanier WL. Medical Interventions at the End of Life: What is Appropriate and Who is Responsible? Mayo Clinic Proceedings 2005;80(11):1411-1413.

Lynn J, Childress JF. Must Patients Always be Given Food and Water? The Hastings Center Report 1983;13(5):17-21.

McCann RM, Hall WJ, Groth-Junker A. Comfort Care for Terminally Ill Patients: The Appropriate Use of Nutrition and Hydration. JAMA 1994;272(16):1263-1266.

Mappes TA. Persistent Vegetative State, Prospective Thinking, and Advance Directives. Kennedy Institute of Ethics Journal 2003;13(2):119-139.

Mayo TW. Living and Dying in a Post-Schiavo World. Journal of Health Law 2005;38(4):587-608.

McMahon MM, Hurley DL, Kamath PS, Mueller PS. Medical and Ethical Aspects of Long-Term Enteral Tube Feeding. Mayo Clinic Proceedings 2005;80(11):1461-1476.

Meisel A. The Role of Litigation in End of Life Care: A Reappraisal. Improving end of Life Care: Why has it Been so Difficult? Hastings Center Report Special Report 2005;35(6):S47-S51.

Mitchell SL, Buchanan JL, Littlehale S, Hamel MB. Tube-Feeding Versus Hand-Feeding Nursing Home Residents with Advanced Dementia: A Cost Comparison. Journal of the American Medical Directors Association 2003;4(1):27-33.

Moran JD. Families, Courts, and the End of Life: Schiavo and its Implications for the Family Justice System. Family Court Review 2008;46(2):297-330.

Multi-Society Task Force on PVS. Medical Aspects of the Persistent Vegetative State (first of two parts). New England Journal of Medicine 1994; 330:1499-1508. 

Multi-Society Task Force on PVS. Medical Aspects of the Persistent Vegetative State (second of two parts). New England Journal of Medicine 1994; 330:1572-1579. 

Murphy TJ. Drafting Living Wills After Schiavo. Arizona Attorney 2006;March:36-41.

Noah BA. Life, Death and Politics: The Long Good-Bye. Journal of Philosophy, Science & Law 2003;3. Available at

Noah BA. Politicizing the End of Life: Lessons from the Schiavo Controversy. University of Miami Law Review2004;59:107-134.

Perry, J.E. Biblical BioPolitics: Judicial Process, Religious Rhetoric, Terri Schiavo and Beyond. Health Matrix2006;16(2):1-59.

Perry JE, Churchill LR, Kirshner HS. The Terri Schiavo Case: Legal, Ethical, and Medical Perspectives. Annals of Internal Medicine 2005;143(10):744-748. 

Preston T, Kelly M. A Medical Ethics Assessment of the Case of Terri Schiavo. Death Studies 2006;30(2)121-133. 

Quill TE. Terri Schiavo — a Tragedy Compounded. New England Journal of Medicine 2005;352(16):1630-1633.

Racine E, Amaram R, Seidler M, Karczewska M, Illes J. Media Coverage of the Persistent Vegetative State and End-of-Life Decision-Making. Neurology 2008;23(7):1027-1032.

Rohlinger D, Profitt JM. How much does ownership matter? Deliberative discourse in local media coverage of the Terri Schiavo case. Journalism 2016;18:1274-1291. DOI:

Roscoe LA, Osman H., Haley WE. Implications of the Schiavo Case for Understanding Family Caregiving Issues at the End of Life. Death Studies 2006;30(2)149-161. 

Schatz GS. Reflections on Schiavo: Are Medicine, Ethics, and Law Enough Anymore? Medical Humanities Report, Summer 2005;26(2):1-3. Available at

Schneider CE. Hard cases and the Politics of Righteousness. Hastings Center Report 2005;35(3):24-27.

Shepherd LL. Shattering the Neutral Surrogate Myth in End-of-Life Decision Making: Terri Schiavo and her Family. Cumberland Law Review 2004-2005;35(3):575-595. Available at (Abstract)

Shepherd L. Terri Schiavo: Unsettling the Settled. Loyola University Chicago Law Journal 2006;37:297-341. 

Sieger CE, Arnold JF, Ahronheim JC. Refusing Artificial Nutrition and Hydration: Does Statutory Law Send the Wrong Message? Journal of the American Geriatrics Society 2002;50(3):544-550.

Smith J. A Good Death, or a Public One? BMJ 2005;330:0.8 Available at

Snead OC. Dynamic complementarity: Terri’s Law and Separation of Powers Principles in the End-of-Life Context. Florida Law Review 2005;57:53-89.

Truog RD, Cochrane TI. Refusal of Hydration and Nutrition: Irrelevance of the "artificial" vs "natural" Distinction. Archives of Internal Medicine 2005;165(22):2574-2576.

Werth JL. The Implications of the Theresa Schiavo Case for End-of-Life Care and Decisions. Death Studies2006;30(2)99-100. 

Wijdicks EFM, Cranford RE. Clinical Diagnosis of Prolonged States of Impaired Consciousness in Adults. Mayo Clinic Proceedings 2005;80(8):1037-1046.

Wolfson J. Erring on the Side of Theresa Schiavo: Reflections of the Special Guardian ad Litem. Hastings Center Report2005;35(3):16-19.

Wolfson J. Schiavo's Lessons for Health Attorneys When Good Law is All You Have: Reflections of the Special Guardian Ad Litem to Theresa Marie Schiavo. Journal of Health Law, 2005;38(4):535-586.

Wolfson J. Defined by her Dying, not her Death: The Guardian ad Litem's view of Schiavo. Death Studies2006;30(2)113-120.

PVS, Miscellaneous

Arnold R, Aulisio M, Begler A, Seltzer D. A Commentary on Caplan and Bergman: Ethics Mediation- Questions for the Future. The Journal of Clinical Ethics 2007;18(4):350-354.

Caplan AL, Bergman EJ. Beyond Shiavo. The Journal of Clinical Ethics 2007;18(4):340-345.

Council on Scientific Affairs and Council on Ethical and Judicial Affairs. Persistent Vegetative State and the Decision to Withdraw or Withhold Life Support. Journal of American Medical Association 1990;263(3):426-430.

Darr K. Terri Schindler Schiavo: End-game. Hospital Topics 2005;83(2):29-31.

Dubler NN. Commentary on “Beyond Schiavo”: Beyond Theory. The Journal of Clinical Ethics 2007;18(4):346-349.

Eisenberg JB. Schiavo on the Cutting Edge: Functional Brain Imaging and its Impact on Surrogate End-of-Life Decision-Making. Neuroethics;20081:75-83.

Fox E, Daskal FC, Stocking C. Ethics Consultants’ Recommendations for Life-Prolonging Treatment of Patients in Persistent Vegetative State: A Follow-up Study. The Journal of Clinical Ethics 2007;18(1):64-71.

Owen, AM, Coleman MR, Boly M, Davis MH, Laureys S, Pickard JD. Detecting Awareness in the Vegetative State. Science 2006;313(5792):1402.

Owen AM, Coleman MR, Boly M, Davis MH, Laureys S, Pickard JD. Using Functional Magnetic Resonance Imaging to Detect Covert Awareness in the Vegetative State. Archives of Neurology 2007;64(8):1098-1102.

Sara, M, Pistoia, F, Cernera, G, Sacco, S. The Consciousness Dilemma: Feel or Feel of Feeling? American Medical Association 2008;65(3):418-419.

Voss HU, Ulug AM, Dyke JP, Watts R, Kobylarz EJ, McCandliss BD, Heier LA, Beattie BJ, Hamacher KA, Vallabhajosula S, Goldsmith SJ, Ballon D, Giacino JT, Schiff ND. Possible Axonal Regrowth in Late Recovery from the Minimally Conscious State. The Journal of Clinical Investigation 2006;116(7):2005-2011.


Collins T. Dealers of Death: The Right-to-Die Movement is Using Terri Schiavo. Are you Next? Planet Envoy!2004;January. Available at

Eisenberg D. Should Terri Schiavo Live or Die? Aish HaTorah 2003; Available at$.asp

Kunin J. Withholding Artificial Feeding from the Severely Demented: Merciful or Immoral? Contrasts Between Secular and Jewish Perspectives. Journal of Medical Ethics 2003;29(4):208-212.

McHugh P. Annihilating Terri Schiavo. The American Jewish Committee 2005;119(6):27-32.

Nelson LJ. Catholic Bioethics and the Case of Terri Schiavo. Cumberland Law Review 2004-2005;35(3):543-574.

Sisti DA, Caplan AL. Would the Pope get a Feeding Tube? Chicago Tribune Dec. 26, 2003; p. 21. 

Sulmasy DP. Terri Schiavo and the Roman Catholic Tradition of Forgoing Extraordinary Means of Care. Journal of Law, Medicine & Ethics 2005;33(2):359-362.

Miscellaneous Journalism, Advocacy, Satire 

The New York Times publishes a retrospective article and video on the case, April 20, 2014:

Boehlert E. A Tale Told by an Idiot. Salon, March 31, 2005, 

Cohen E. How Liberalism Failed Terri Schiavo. The Weekly Standard, 2005;10(27). Available at

Darney PD, Rosenfield A. The Supreme Court Joins the Multispecialty Group Practice of the Congress and the President. Obstetrics & Gynecology 2007;110 (2.1):226-227.

Johnson, HM. Not Dead at All: Why Congress was Right to Stick up for Terri Schiavo. Slate, March 23, 2005. Available at

The Onion, April 6, 2005: "Terri Schiavo Dies of Embarrassment." 

The Onion, April 13, 2005: "Preparing a Living Will." 

Smith WJ. Human Non-Person: Terri Shiavo, Bioethics, and Our Future. National Review, March 29, 2005,

Swanson D. "Feeding tubes for the Third World." Let's Try Democracy, March 21, 2005. Available at